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New to neuropathy, terrified and seeking advice from you guys
Neuropathy | Last Active: Oct 23, 2022 | Replies (109)Comment receiving replies
@johnbishop Yes he labeled it neuropathy of the extremities (small fiber). Told me it was likely genetic as my dad has it though not nearly as pronounced for him. He feels it only in his feet. Dr offered to find a testing clinic be able to label the exact neuropathy in hopes that progress could be made on a cure. My onset was about 4 years ago but it seems to be getting worse much quicker now. Thank you for the resources I will dive in now. Has any one reported consistently tight muscles in the feet, calves and hamstrings in the forum. It’s odd because once stretched out the symptoms are much better but never feel like I’m fully stretched out so I’m wondering if this is more related to my active exercise routine rather than the neuropathy. Thanks again.
Replies to "@johnbishop Yes he labeled it neuropathy of the extremities (small fiber). Told me it was likely..."
Hi @mikeconnors1
I am a bit busy at the moment, I will write a longer post, with regards to muscles and tightness. My short answer is for me they are related. I will mention what i am doing for it.
JFN
I have the tight muscles. Through trial and error, I have found that water therapy helps the most. However, they return to tight.
I have SFN and fibromyalgia. I fought against the fibromyalgia diagnosis for years, probably due to the negative image it has in society, but I know I have it. I don’t think men get that diagnosis as often as women. One of the hallmarks is symmetry. Pain occurring on both sides of the body equally. There is so much more to it, but muscle stiffness is common.
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Sadly there is no cure for neuropathy, just treatments for the symptoms. My hope was always for stem cell therapy but it's not been proven and hope is a long way off. I haven't searched for members with tight muscles in the feet, calves and hamstrings but I'm sure there are members with similar symptoms. Hopefully they will see your post or this one and share there experiences. There are a couple of similar discussions that you might want to read through to see if the symptoms match up.
-- I have extremely tight muscles. Nothing seems to help. Advice?: https://connect.mayoclinic.org/discussion/hard-muscles/
-- Neurogenic Muscle Tetany (contractions): https://connect.mayoclinic.org/discussion/neurogenic-muscle-tetany-contractions/