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Anyone experienced Elevated Liver Enzymes from Cellcept or Tacrolimus?
Transplants | Last Active: Oct 11, 2022 | Replies (43)Comment receiving replies
Welcome @mlr733, to the transplant group. I thought I would answer you here to bring you into a discussion related to Cellcept so you can get feedback from fellow members like @rosemarya @hello1234 @athenalee and others.
You asked:
"I've been taking cell cept for 14 yrs post liver transplant. My liver doctor retired so recently I saw new liver doc, who wants me entirely off cell cept for good. Anyone gone through this sort of issue? Thankx"
Can you give us a bit more information? Did your new doctor explain why s/he wants you off of Cellcept entirely?
Replies to "Welcome @mlr733, to the transplant group. I thought I would answer you here to bring you..."
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Hi, @mlr733 I too Welcome you to Connect.
I had my liver transplant in September 2016 and was taken off of Cellcept in less than a year, I am thinking it was at around 6 months. I was then just on Tacrolimus but eventually that was changed to Sirolimus due to high creatinine. They first tried having me drink 80-100 ounces of water a day but that was not enough help so they changed me to Sirolimus and I have not had a problem since. So, Sirolimus is the only anti-rejection medication that I am now on. I was on a tiny dose of prednisone for a long time but I finally got off of that about a year ago. I have never had a single problem post-transplant so they must be doing something right.
I think the bottom line is that each transplant center has its own preferred protocols that they tailor to each particular patient. If you trust your new transplant center, and I assume they would follow you with more frequent lab work than usual, then I would welcome getting off of a medication. I just figure the fewer medications I am on the better.
JK