Hi @caretakermom 😊
You are correct that Transplant controls immune suppression. Infectious Disease can only make recommendations. I had active CMV with bad symptoms and a much, much higher viral load than your husband is experiencing, so Transplant was agreeable to the suggestions made.
I agree with your idea to request a standing order from your local nephrologist for monthly labs instead of every 3 months with all this going on.
I caught my current BK virus during my routine labs for my local nephrologist. My BK is something that is latent from me or my donor I guess. (It has nothing to do with a UTI or something external.) Unfortunately, it's another virus like CMV that immune suppressed kidney transplant patients can get so it's tested for regularly. The solution is a reduction in immune suppression so my body can fight it. Today is the first day of my reduced dosage.
My understanding is it can take up to a year to finally resolve.