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Autoimmune Pancreatitis

Autoimmune Diseases | Last Active: Mar 21, 2023 | Replies (17)

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@bobb46

About 3 months ago I was diagnosed with Auto-immune pancreatitis; ECRP biopsy and blood indicators show no sign of cancer. They put a stent in to open my bile duct. I did an 8 week course of prednisone (40mg/day for 4 weeks, then reduce by 5mg each week for the next 7 weeks.) During that time I felt okay except for some prednisone side effects. About a week after the prednisone ended, I started feeling upper belly/back pain, got a CT scan and discovered the pancreas was still angry and swollen and blocking the bile duct. Another stent, more biopsies, blood work etc.; still no indications of cancer. I started on another prednisone course, 1 week each at 40, 30, 20, and 10mg along with a 50mg/day dose of Imuran. I am 2 weeks into it and am feeling dizzy and upper belly/back pain again.

My questions: Is this auto-immune pancreatitis? What else could it be? Should I get a second opinion? This will require me to fly to another doctor/facility.

Thanks so much for the help.

Bob

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Replies to "About 3 months ago I was diagnosed with Auto-immune pancreatitis; ECRP biopsy and blood indicators show..."

Welcome Bob. You'll notice that I moved your message to this existing discussion about autoimmune pancreatitis.
- Autoimmune Pancreatitis: https://connect.mayoclinic.org/discussion/autoimmune-pancreatitis-1/

I did this so you can connect with other members like @harper7745 and @hlj.

Bob, it does sounds like you'd benefit from a second opinion. If you'd like to request on appointment at Mayo Clinic, click this link to get started: http://mayocl.in/1mtmR63

I'm glad that cancer has been ruled out.