← Return to Valley Fever

Discussion

Valley Fever

Lung Health | Last Active: Nov 7, 2023 | Replies (20)

Comment receiving replies
@bcmevans22

Thank you for your response! My first symptoms were coughing ALOT, chest pressure, and hard to breathe. Went to my general doc and she ordered a CAT Scan, and found me a lung doc while waiting for CAT scan results. After my lung doc reviewed my CAT scan results, he said it could be a cancerous tumor and if so, they could take it out. Then I had the biopsy for cancer and it came back negative, and then it was decided it must be Valley Fever even tho all the tests were negative, so no specimen to be cultured to see if bacteria grew. Being on the Fluconazole did help with my cough after a month. No other treatment recommended, except a 6 month checkup. But my general doc that I see will definitely send me for another CAT after 6 months. The CAT scans showed Jan - 3.3 x 2.8 x 2.8, Apr - 3.4 x 2.7 x 2.9, Aug - 2.7 x 3.2 x 2.7 Do you agree that it is ok to leave alone in my lung? Do you suggest further research?

Jump to this post


Replies to "Thank you for your response! My first symptoms were coughing ALOT, chest pressure, and hard to..."

Let me preface this - I am not a doctor, but a lung patient who had a "mystery illness" for over 4 years before it was properly diagnosed. My symptoms were coughing, fatigue, shortness of breath, increased asthma symptoms, and coughing up dark green sputum. I was treated for bronchitis, pneumonia, intractable asthma - over and over, with short periods of relief. I was seen by my primary, as well as by Urgent Care and ER docs while traveling.

In 2018 I could no longer walk one block without pausing, and was coughing 24/7. My PCP was on leave, so I was seen by her sub, who ordered a new lung x-ray & thought she saw "something suspicious" so she referred me for a CT scan.

The radiologist reported many abnormalities in my lungs & I was seen by a pulmonologist who diagnosed bronchiectasis & suspected 2 likely lung infections. He suspected Valley Fever but the test was negative. Then he sent in 3 sputum samples that were cultured & after one week I was diagnosed with pseudomonas & treated. Several weeks later they also diagnosed MAC (Mycobacterium Avium Complex) a very slow growing relative of TB. Routine blood tests do not show these infections - they hide deep in the lungs.

Pseudomonas is almost always treated with specific antibiotics after identified. MAC may or may not be treated, depending on symptoms and severity.

As long as you are feeling better and you are going to be watched closely, "wait and watch" is a legitimate strategy. But, if you begin to feel ill again, or the mass grows, and you again test negative for Valley Fever, you might want to explore the possibility that you have one of the more uncommon infections, especially if you have ever had lung problems before.

Have you had lung issues in the past, or are you a current or former smoker? Do you have other risk factors for lung cancer like family history or exposure to a toxic work environment?
If so, you might want more aggressive research. Otherwise, if you are comfortable with the plan, go for it.
Sue

I have a very similar situation and wondering how your last CT scan was? How are you doing now?