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Autoimmune Fatigue and/or Chronic Fatigue

Autoimmune Diseases | Last Active: Jan 20, 2023 | Replies (166)

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@amandaa

Hi @dorma, That definitely sounds frustrating. I know first hand having symptoms and feverishly searching for an answer.
I moved your post to a discussion that lines up with what you described.
@peach414144, @joannemm30809 and @rarelybees2889 are a few members that I feel like you can connect with.
I see the different tests they did with no definitive answers. Can you tell us what they were testing for and what they have ruled out?

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Replies to "Hi @dorma, That definitely sounds frustrating. I know first hand having symptoms and feverishly searching for..."

I cannot remember all the tests they've done, but they were always searching for some reason for my body being so weak. Even tested for TB, vitamin deficiency, brain problems, lung problems, since I had one lung totally collapse in the past. I do have fibromyalgia, which we know causes CFS, but this is way beyond fatigue. Several skeletal problems, but that's not causing the weakness, of course. I don't have the results yet from the nerve/muscle test, but I don't expect anything at this point.
They have sent me to several specialists, but no help at all. Needless to say, it is depressing.