← Return to Hodgkin Lymphoma was stable, now new activity

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@hnipper1

Well the first installment of bendamustine (over two days) went well. So far, the only side effect has been mild fatigue on the days I received the infusions. Today - one day out - I seem to have more energy and alertness. Will have several more infusions of bendamustine over the next few months and then another PET scan to assess progress. Here's hoping!!!! What a ride this has been!

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Replies to "Well the first installment of bendamustine (over two days) went well. So far, the only side..."

Well, the scond installment of bendmustine (over two days) was Wednesday and Thursday. They give me my regular dose of nivolumab followed by bendamustine on Day 1, and then on Day 2, just bendamustine. On the seond day, a couple of hours after I got home, i began to have shaking chills, so after not being able to contact my oncologist, went to the ER, where I was observed for several hours, and then discharged with no treatment. By then the shaking chills had subsided. After I got home, I ended up on the floor in our TV room, and the old cliche "Help, I've fallen and I can't get up!" came into play. I was so weak, that I couldn't get up - even with the assistance of my wife! I finally was able to rise from the floor and went to bed. Today, (Friday) there has been no recurrance of the shaking chills, and I seem to have regained my strength, although I do have some balance issues. Anyone else have similar experiences? Obviously I have to decide whether to take the third cycle of bendamustine that will come up in a month from now! It is very interesting that I did not have any side effects from the first cycle and none from the first dose day-before-yesterday, just the reaction on day two of cycle two!!!!