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Lung Transplantees: Let’s connect

Transplants | Last Active: Sep 7, 2022 | Replies (20)

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@jackiez

Hi Terry,
I’m a heart and double lung transplant from April 2021. Do you have a question about a lung transplant topic? Or experience?

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Replies to "Hi Terry, I’m a heart and double lung transplant from April 2021. Do you have a..."

Hi Jackie. Thank you for your reply. I was put on the deferred list last week at Mayo as I am not in bad enough shape yet to get listed. Although I am glad of that, I also realize that that day is coming; probably sooner than later. I have rare genes that are going to make my transplant especially difficult; as in, constant rejection. The drs at Mayo assure me that it is surmountable, but all medical journals indicate that I would not have a good outcome. I plan to ask my surgeon to provide me with some that say otherwise. Have you had any issues with rejection? I had read that it is common to experience that at least once post Ltx. How was your recovery? One of the drs told me that the first month is pure hell, but after that, patients are glad they went through the transplant. How are you doing theses days?