← Return to Long haul Covid tremors and muscle spasms

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@artistandtwin

I've been experiencing a tremor in my hands and muscle spasms in my legs for over a year now (since I got covid the 1st time). My neurologist doesn't seem to be concerned about my tremor, but then again, she doesn't seem that concerned with my incoordinated, slow-as-a-snail ataxic gait.

I need help and encouragement that I will return to normal someday. I am in my 50s and was an active, healthy woman before covid hit.

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Replies to "I've been experiencing a tremor in my hands and muscle spasms in my legs for over..."

Hi there, how are you now? I just wanted to encourage you by saying ‘you’re not alone’. What you have experienced sounds very similar to myself, right down to the ‘ataxic gait’.
Hang in there 😊

Unfortunately, we seem to be part of a class that has been left behind. I understand the world wants to move on from Covid, but every day is our own fully blown, surging pandemic. My neurologist did not find it strange that I couldn’t stand on 1 foot for longer Than one second, never mind the fact it took me a few tries to discern between my left and my right foot! Furthermore, Barak Obama is NOT the current president of the United States, nor was, she concerned that I didn’t know what hospital I was in… Mind you, it was the hospital I was born in! I was not told that the MRI scans of my brain showed brain lesions, and sadly it feels like I am the last one to know that things are being stripped away from me. I too, was very healthy and active at 48 years old, and now seemingly where you are at as well. Nothing in my body seems to function, normally, and the lack of understanding or desire to be around other people is defeating. If nothing else, we can support one another as a unified community and remind each other, that we are not alone. My love, understanding, and hope go out to all those who are affected as well.

My neurologists are the same way.They are not too concerned I can barely walk.I was perfectly healthy in my 40's and exercised all of the time and now I am pretty much disabled.I don't even look like the same person I did 2 years ago.My body was so destroyed it feels like I am in a strangers body.I had thyroid disease since my 20's,but I am just trying to figure out how the healthiest people are the ones that got hit the hardest.The only thing I can think of is that we make better hosts for the virus.The people that are bedridden were training for marathons,yoga instructors,don't smoke or do drugs,etc.They are not doing nearly enough research or have enough help available for people suffering from Long Covid.So many people worked so hard during the Pandemic and had to leave their jobs due to long covid.Disability is so hard to get too without actually having a more specific diagnosis than long covid.So anyone that got long covid is punished for something that we never even had a chance of fighting since it was manmade.So crazy!