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Anyone diagnosed with Phyllodes tumor?

Cancer | Last Active: Oct 7 3:59pm | Replies (66)

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@rcmlee

@ssinkey My wife recently had a mastectomy in March 2022. Her case was different as she was diagnosed with MPT and her size was also big (>10 cm). In your case it is reassuring that this is benign and the size is small (1.1 cm). What i have learnt particularly after doing research is that the accurate diagnosis is by doing a surgical biopsy and not a needle biopsy. I assume that is same as core biopsy. If not, you should ask for one. We would have acted much faster if this was the diagnosed earlier and possibly had a lesser intrusive surgery.

Also, considering your tumor is small you can ask for WIDE margins which reduces its chance of recurrence. I dont believe they will do radiation but check please ask your Doctor on the same. I would also recommend to take a second opinion in a research institution like Mayo to get more information to decide on next steps including surgery and any preventative treatment. I would recommend you consult an oncologist who specializes in Sarcoma (not carcinoma) apart from a breast surgeon here basically get recommendations from 2 institutions for a total of 4 doctors. I I would also recommend you join the Phyllodes support group in facebook where you get some really good tips and advice. HTH and and i am sure everything will be great.

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Update: On September 2, 2022 I had my lumpectomy for my Phyllodes tumor on my right breast. They were able to get wide margins. I have my follow up appointment in the morning to get my pathology results. Hoping they are benign. If benign the plan is to monitor every 6 months with Mammograms and ultrasound to monitor for reoccurrence. If borderline or malignant then they will do Bilateral mastectomy and radiation. I will update the group once i get results tomorrow.