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I'm so sorry for all you've had to go through and the life of your son. I had a very similar experience. I had an emergent c-section at 33 weeks. I had a slow bleed within my uterus for about 10 hours after the next day and ended up in DIC as well. I spent about 2 days in the ICU and a week in the hospital. I also had the brain fog, weakness (I was released with a walker and wheelchair for longer walks), speech problems, nausea, balance issues, and some bladder and bowel symptoms. I actually came home so confused about just daily tasks and felt really out of it.

I'm a little over two years out now, and the brain fog and speech has gotten much better. I don't remember things like I've used too though, but it's gotten much better. The one thing I wish I would have fought for is more therapies when I got home, specifically pelvic floor and physical therapy for the overall weakness. I ended up tearing my acl the following year, because of the weakness. Did you have to get a hysterectomy? I did and was told afterwards that there might have been a chance that my ovaries didn't get enough blood flow and wouldn't be working correctly, so maybe see about checking your hormone levels. I did end up having both ovaries removed within the two years. I ended up developing endometriosis after as well and an abdominal wall endometrioma, which will be my fifth and hopefully final surgery since all of this.

I did have some mood swings directly after and questioned my hormone levels a bit, but was also diagnosed with PTSD. You've been through a life altering trauma, and at the beginning it seems like you'll never be able to move on, but I promise it does get easier. Find a good therapist, be patient with yourself, give yourself the grace and rest you need for your body to recover, and don't be afraid to ask questions and advocate for yourself.
I had a doctor tell me for the first year and a half that I should be happy with my quality of life, because at least I'm alive. I found another doctor and they called them quality of life issues, and have helped me so very much. I'd push for physical therapy and pelvic floor therapy as well that would have saved me so much trouble.
I'm sending you so much love, and please feel free to reach out if you need someone to vent to.

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Replies to "I'm so sorry for all you've had to go through and the life of your son...."

Thank you. Could we chat via email? I am struggling less with my quality of life now than I first did when I came home.. each day is a little better....but then there are days that I just want to stay in bed......
Thank you for all your kind words.. I'm sorry to hear of what you went thru... you're a strong a** woman!