← Return to 200+ transfusions in two years! Rare strain of anemia...advice please

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@renaldo

Forgot...the government health care policy she has, has care limits.

They stopped services after 6 transfusions and released her with a low hemoglobin level.

I fear, because of budget cuts, services will be cut even more.

My wife is a very private woman. We were getting a private room but that is ending soon. She, in the future, must share. In this country whole families often move in with their loved ones, being disruptive, dirty, annoying.

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Replies to "Forgot...the government health care policy she has, has care limits. They stopped services after 6 transfusions..."

Ron, It's a long shot, but here are a few options that you may wish to look into. Mayo Clinic experts work with health care systems around the world. You may wish to contact Mayo Clinic to find out options in how your Indonesian team might be able to get support and advice from Mayo Clinic.

Perhaps through a Mayo Clinic Care Network member facility. See the list of members here, which include 3 facilities in China.
https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

Contact Mayo Clinic's International Services to find out possible virtual options available to you: https://www.mayoclinic.org/departments-centers/international

Might there be similar services offered by large teaching hopitals in Australia? This would be a closer option for you.