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CIDP and concerns about treatment risk factors

Posted by casey1329 @casey1329, Jul 25, 2022

I'm very concerned because my 71 yr. old husband is to be treated for "Chronic Inflammatory Demyelinating Polyneuropathy" by Gamunex-C ( immune globulin) infusion therapy. Concern stems from the fact that my husband is older ( a risk factor mentioned by Gemunex), has high platelets 434 and Gemunex increases platelet levels. Lastly, my husband tends to get leg blood clots and Gemunex increases the risk for clots. Has anyone had experience with this type of therapy and what do you think about my concerns ? Thank you

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jamiemccorkle | @jamiemccorkle | Aug 21, 2022
In reply to @johnbishop "Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry..." + (show)
@johnbishop

Hello @jamiemccorkle, Welcome to Connect. Thank you for being an advocate for your dad. I'm sorry to hear his IVIG treatments have stopped working for him. We merged your post into another discussion on the same topic here - CIDP and concerns about treatment risk factors: https://connect.mayoclinic.org/discussion/cidp/ so that you can connect with other patients like @kimegraves @casey1329.

While we wait for other members who have been treated for CIDP at Mayo Clinic to share their experience, I thought I would share the following video with you.

" Jun 1, 2018 Dr. P. James Dyck and Dr. Peter J. Dyck, Neurologists from Mayo Clinic in Rochester, MN, dialogue about an article appearing in the June 2018 issue of Mayo Clinic Proceedings, which examines the “discovery” of Chronic inflammatory demyelinating polyradiculoneuropathy from its roots. The article provides and update on the current and best treatment options. " --- Chronic Inflammatory Demyelinating Polyradiculoneuropathy: https://youtu.be/eZL2wx4xQ08

Are you looking to get an appointment at Mayo Clinic for your father?

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Thank you for your response! We have a phone consult scheduled for tomorrow, so crossing our fingers for good news! His neurologist is leaving the state soon and has been negligent in answering our questions, unfortunately!

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