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@hello1234

Hi @l0lag0lag0b3 😊
Good morning! Great to hear from you! Thanks so much for responding. It is very kind of you to jump in. I am not sure why I posted this situation since I totally agree with you....we all need to advocate for ourselves and I know this to be true too. I guess in my heart, I was hoping someone was going to share a successful, positive story of an excellent, timely, smooth process of communication between the doctors that would make me feel better that my experience is a fluke. I know that both my local doctor and the hospital doctors are all stretched for time, so the breakdown of communication could have happened on either side. Bummer.
Thanks again for being so supportive all the time l0lag0lag0b3

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Replies to "Hi @l0lag0lag0b3 😊 Good morning! Great to hear from you! Thanks so much for responding. It..."

@hello1234 While I am not a transplant patient, my husband is. Before we moved here three years ago, his transplant team kept in regular contact with his local nephrologist about anything. I recall less a year after his transplant, he got a call out of the blue from them, to come in immediately. Turned out the other kidney recipient from the same donor had Hep C. After priority testing, we found out the other recipient had latent HepC that was triggered by the post transplant meds. Hubby was fine. And I insisted in getting vaccinated myself. Upshot of that, was the communication and all, was great.

Unfortunately, up here, we are often left to advocating for his care, and being the procrastinator he is, it falls to me to make the calls/or make reminders all the time.

My nephrologist and oncologist are in separate practices, but they are in great communication with each other, as they coordinate my care with end stage renal disease, and a blood cancer, sleeving treatments together to keep me going. I feel very blessed to have these two as part of my medical team.
Ginger