Hi @amandajro
Yes, you are correct. I am a two year post transplant patient and my blood work came back BK Virus positive on Monday. When I met with my local nephrologist on Tuesday morning, the last thing he said was that he was going to reach out to my transplant coordinator to speak with a transplant doctor to discuss the plan for BK. (This was the first time he ever said he wanted to speak with a transplant doctor). He told me that he would be calling me in a day or two to share what he learned. The week passed and I received no call back from my local nephrologist.
My saving grace is that I am physically going to Mayo for my annual visit this week and I will be able to ask all of his BK questions, share his thoughts, and get the treatment plan directly.
Anyway, I look at this experience as a "drill". If it's important to have coordination between your local doctor and transplant doctor, how is it supposed to work? For the last two years, I have been the go-between person making the calls, and keeping both sides in the loop, this is the first time he said he wanted to call.
I am just a little disappointed.