Hello, my name is Ron. My wife, Cilvia, and I live in Yogyakarta, Indonesia. She is 52, I am 75.

Cilvia has been dealing with a very rare strain of hemolytic anemia for four years.

So far it has caused her to lose sight in her left eye, she has fainted a couple times, her hemoglobin level gets very low, shows signs of weakness, she bleeds excessively from her nose for hours on end, she bruises easily, she has had over 200 blood transfusions and needs hospitalization twice a month.

We live in Indonesia where health care is limited in scope and ability to cure or control. They do not even have the ability to diagnose.

They have done embolism treatment, packing of nose, some radiation. None have worked to stop the bleeding. She will have blood clot in her nose or sinus and to get it out requires a lot of nose blowing, making her begin to bleed incessantly.

We are trying to reach out for advice on how to diagnose and control this bleeding as it makes here hemoglobin level down into dangerous zone.

I have some money in a retirement account. I know it would not be nearly enough to pay out of pocket for healthcare in the states. I was wondering if anyone knows of any foundation or endowments that help pay for such care for those who cannot afford it?

Please help if you can.

God Bless You,
Ron