Connect
← Return to 200+ transfusions in two years! Rare strain of anemia...advice please
Discussion
200+ transfusions in two years! Rare strain of anemia...advice please
Blood Cancers & Disorders | Last Active: Sep 21, 2022 | Replies (31)Comment receiving replies
Thank you for your response Lori.
I will go to the sites you posted to see if I can gather some information to pass on to her doctors here.
Do you know of any foundations or endowments that would help us pay for medical services for her should I be able to get her to the United States safely? I have some money in my retirement and would spend every penny but I know it will not be enough to pay for the outrageous medical expenses so common in the states now.
We need help as her condition worsens.
My wife's name is Cilvia, she is from Sumatra and 52 years old.
I am from Los Angeles, have been living in Indonesia now for 10 years and am 75 years of age.
The warmest of regards,
Ron
Replies to "Thank you for your response Lori. I will go to the sites you posted to see..."
Connect
Dear Ron and Clivia. My heart is aching for concern over your wife’s condition. I really don’t know of any agencies or foundations to assist you to get to the US.
Since you provided @colleenyoung with your location of Yogyakarta, Indonesia, I looked up nearby hospitals in larger cities. You’re on the same island as Jakarta. That being the capital, has quite a few major hospitals from what I found.
Getting into a larger clinical setting, preferably a teaching hospital associated with a university would be very beneficial for your wife. There they would have more sophisticated technology to help diagnose your wife’s condition and potentially find a suitable treatment plan for her. It would be about 8 hours drive or 1.5 hour flight from your home instead of flying 14 hours or more to the US.
Have you tried getting a referral to a clinic in Jakarta? Your local doctors may work with you to help secure an appointment for you wife. What do you think?