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@charlotteclaire

I started Tymlos end of May this year....very very fatigued, then big belly and swollen feet.. She took me off Tymlos for two weeks and of June, then on one half dose. Then back on and vertigo, dizzy ever since...Doctor doesn't seem to hear me, going for neck xrays, blood tests, hearing tests and more. Should I stop Tymlos for couple weeks and see if vertigo/dizziness stops????

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Replies to "I started Tymlos end of May this year....very very fatigued, then big belly and swollen feet....."

Hi, @charlotteclaire
It's interesting to me to see you mention that your feet have gotten swollen too since taking Tymlos. Mine have been but I have not been able to find anyone at the pharmacy to say that is a side effect. Many people do speak of the belly, referring to it as "puffy belly". I mentioned that to the pharmacist and he said he had not heard of that but there is a side effect of "distended abdomen"! Really, he couldn't figure out that those things were the same?

A while ago I did stop Tymlos for a couple of weeks to see if the belly would get better, I am quite sure it is fluid retention. It did get substantially better but it would have needed more time to totally dissipate. Since I just wanted to confirm that Tymlos was the cause I didn't need to go further.

I do get mildly light-headed occasionally but I do not think in my case that Tymlos is the cause because I'm pretty sure that I was having that difficulty before starting Tymlos. I do get fatigued a bit more than prior to taking Tymlos but it hadn't occurred to me that Tymlos might be the cause of that. I have just attributed it to age.

I have been taking Tymlos since March of 2021 and intend to stop at the end of the year. I would just have a couple of months in 2023 and since the first month tends to be very costly with my deductible I will just skip what would be the last two months. My endocrinologist has said that's not a problem.
JK