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Heart Rhythm Conditions – Welcome to the group
Heart Rhythm Conditions | Last Active: 2 hours ago | Replies (937)Comment receiving replies
Dana, with the information you gave me, you have a 1 in a million heart too. With yours however, you have multiple pathways I assume are just in the Right Atrial chamber and the SA Node (the heart’s natural pacemaker) is involved. You didn’t mention if the pathways attached to the AV Node(the Command Center) that tells the Right and Left Ventricles to contract and pump the chamber full of blood. You do have a complicated heart but I don’t know if I asked you certain questions, you might not know the answer.
My pathway is just one extra that connects the SA Node and the AV Node together in a complete circle. When a pulse beat jumps into the short circuit circle, it just keeps commanding the right ventricle to pump. The normal pathway is also commanding the right ventricle to pump. That causes my heart to go into Tachycardia and has been clocked at 197 bpm. So yes, our hearts are similar and I would assume yours is a genetic birth defect too.
Now you need to start investigating your family’s past and current medical history. Others may have similar defects and don’t know it yet. I discovered 5 so far in my family with unusual heart problems. Good luck with your heart repair, they’re still waiting to map mine out. @becky1024
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Hi Becky , I thought I mentioned it, but maybe not. My Heart got so bad and the pathways were not reachable so the only option was transplant.
The medication keeping me alive the IV type of Amiodroine had to be at a high level and it ended up becoming Toxic to me. Realize that towards the end I was getting shocked so much I actually had to seek counseling to try and deal with a form of PTSD against my pacemaker. I would be in anticipation of the next shock that it can actually put you into an arrhythmia just thinking about it. It's amazing how the stress of a medical condition can really actually make the condition worse. So I did see a counselor for a while and it helped a lot. But my heart wasn't getting any better.
As for my condition it wasn't hereditary as I had a great heart up until I had a bad flu virus. It was in 2008 and it caused the sac around my heart to fill up with fluid. Which due to the fluid the heart had to try and beat against all that fluid . This caused the heart to get enlarged which is not good for a heart. This is what caused the bad pathways to grow and with the thick walls hard to get to. With the many ablations, the pacemaker and medications it did give me a pretty good life from 2008 until 2017. But it was after the last of about 8 ablations that the doctors recommended transplant. That was December of 2017 my last ablation and after the approval process I was put on the list the last week of December.
Well the good Lord was looking out for me and on Jan 5th 2018 only 5 days on the list I got a new Heart. So now I did have to retire but am very happy with my life now and pretty much do all the things I enjoy. I do hope you are successful with your journey and can get the help you need. Don't get discouraged and it's not a bad thing to get some counseling if things seem to get stressful. I know even during the transplant period I was glad to have some clergy and councilling as I also for a period of time was concerned about the fact that for me to live ment someone else had to die. But that got worked our also. I can't thank the folks at Mayo for all they did for me and they are such a Blessing, But I also know God is watching over me also.
So Becky I hope you discover the reasons for your heart condition
Blessing