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New here: Caregiver for my husband with idiopathic pulmonary fibrosis
Lung Health | Last Active: Sep 18, 2022 | Replies (13)Comment receiving replies
Update on my husband. I wanted others to know he has been on 150 mg nitintab for a month with no harsh side affects. He will get blood works first of sept to see if f kidney liver ok. This was 1 of our concerns about the is medicine. I want to share for others weighing it out. He is still on 2 liters o2 still eating well. I hope Dr can tell is next week if the pill is working. He said it only works in 40 percent of ppl. Also palletive care coming in sept. We are happy for that. And will keep
You updated about that. I don’t know how to navigate this site so Il akways comnent here. And I hope others on sane journey can leave there story here. Thanks for this great site
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Still don’t know how to navigate this site. Wanted to post a update. He’s been on nintintab 150 mg a month. Blood work showed no changes and that’s good. It’s not hurting his liver. Will find out about kidneys 3rd week September. He’s doing about the same. Dr said we won’t know for a year if the pill is working. But we are getting cat scan in 6 months that will tell a lot also. Mild side affects for my husband so far mild. Some diareah and headache. Maybe not from pill but guessing it is. He eats half peanut butter sandwich with pill. If Any1 else has ipf and want to share here. I’d be happy to know about your journey. Any bit of info helps thank you. And Il always post here. I did not find a ipf message board