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Pituitary and pNET: Can't do the things I love anymore

Brain Tumor | Last Active: Oct 30, 2022 | Replies (17)

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@colleenyoung

Your mention of TACE reminds me from a discussion on Mayo Clinic Connect from several years ago that was so helpful for a member choosing between TACE and SirSpheres.

- Have you had TACE or SirSpheres radiation treatment? Please share https://connect.mayoclinic.org/discussion/does-anyone-have-experience-with-receiving-tace-or-sirspheres-which-are-2/

It was such a useful discussion where 2 members shared in-depth information about each procedure to help with decision-making. It's such rich first-hand experience information that one can't get from a brochure.

How has your experience been with transarterial chemoembolization (TACE)?

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Replies to "Your mention of TACE reminds me from a discussion on Mayo Clinic Connect from several years..."

Hi, I went through my part 2 of 3 of the embolization and the 3 tumors they went after have gotten smaller but the pain was awful. He did say he was going to hit me hard on the 2nd go around and he didn't lie. I also have many smaller tumors on my lymph glands and more hear and there around the same area. I just have so much pain, is that normal? I also have a high pain tolerance, and feelings of being wrapped in sickness/pain around my torso which is so hard to explain. I have 23 tumors on my liver and more came in after the procedure but the big ones have shrunken, and the same amount in other areas I feel like I am in the dark in knowing what to expect next. I know this is a non-curable cancer. Thank you , Anthony