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@becky1024 Like you, in the past I have had doctors who had several roles to play beyond being on my medical team. One thing that worked for me is to talk frankly to them, and explain respectfully, and from my point of view, how it was affecting my case to not have them available. Then I asked for a recommendation to someone they have trust and faith in, who could see me, and refer back to the doctor if there were concerns or questions. In all the times I did that, it worked out great! More than one doctor told me he wanted to keep me in his patient queue because my situation was unique, others agreed they were not able to give me the time my case required and had someone step in for them. It wasn't that they were giving up on me, just realizing they were spreading themselves too thin.
Perhaps this approach might work for you. You'll never know, shared wisdom may bring about better results.
Ginger
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I understand what you’re saying Ginger but this is a teaching hospital for medical professionals, doctors, nurses, you name a specialist and they’re probably teaching it in one of their hospitals. They control a lot of technology and in my lifetime, I’ve had at least 50 to 100 doctors if not more, with about 3 or 4 million dollars in bills
I started out defective with 5 genetic defects so far. Back in 2006, my nonexistent immune system challenged the whole medical profession. How you say? I took my then 8yo grandson to the Mouse House, you know the one, where millions of unvaccinated people from around the world come here to go to the Mouse House. Just before we came home, I got real sick. As soon as we got home I was at the ER who then called the best ENT around here. Test after test after test after test were done. Drug after drug after drug was tried to kill the bug(sound familiar).but nothing worked. Week after week runs into a month after month. All they knew, is it’s a Super Drug Resistant Bug, nothing will kill it. Things are getting real bad for me as my doctors contact the CDC, yeh that CDC. They don’t know what drug to try either except the TDOLR. It’s call “The drug of last resort!” It kills 99.99%of EVERY bug in your body, good, bad or indifferent. Lets just say the drug was worst than the disease. That bug was smart tho, it found the only little hiding spot in a human being, where the drug couldn’t reach.
Do I still have the bug, yep but it starved to death. The hiding spot, the very deepest part of the inner ear. I’m partially deaf in that left ear yet, 16 years later. As the saying goes, “The dogs bark is worse than the bite.” To think everyone is worried about a few months time. This body is a disaster to the medical profession. Do you realize how many medical things are wrong with me and I have a doctor to prove it, specialist in fields I never knew existed including multiple mental health professionals including psychiatrist, psychologist and therapist. Why, because my paternal grandfather passed along a genetic defect that causes mental problems.
Thanks to everyone who’s so concerned about me. Time will tell if I’m worth saving because my one cardiologist told me my heart’s so bad, I could drop dead between the first half of a heartbeat and the second half. It happened just like that to my one 1st cousin. He had one foot on his porch and one inside the house and dropped dead, the autopsy said he was dead before he hit the floor. You all are kind wonderful people but you’re worrying over nothing. Just think of my life and the end of it, will it be the next one, the one after that one the one after that? Get the point? I could be dead before I even post this and y’all be worrying about November!!! Luv ya.