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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 17 hours ago | Replies (854)

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@becky1024

Sounds simple but complicated. My Electrophysiologist (Heart Rhythm Doctor) is so busy, he had to see me during his lunch break. He’s the boss of 35 other doctors , so he has no time for a conference call. My .PCP is so busy teaching other doctors, in the beginning of July I scheduled my next appointment. I set it up and guess when it is, January 6th, 2023. That’s just two of my Doctors, my Oncologist/.Hematologist is also the top boss in the Oncology Department. My Neurologist is in a different hospital altogether. Sounds simple but complicated huh. November will be here before they could all find the time.

Plus I think my Oncologist is bringing in another doctor for consolation and may also bring a Geneticist to the team. Thanks for caring. Becky

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Replies to "Sounds simple but complicated. My Electrophysiologist (Heart Rhythm Doctor) is so busy, he had to see..."

@becky1024 Like you, in the past I have had doctors who had several roles to play beyond being on my medical team. One thing that worked for me is to talk frankly to them, and explain respectfully, and from my point of view, how it was affecting my case to not have them available. Then I asked for a recommendation to someone they have trust and faith in, who could see me, and refer back to the doctor if there were concerns or questions. In all the times I did that, it worked out great! More than one doctor told me he wanted to keep me in his patient queue because my situation was unique, others agreed they were not able to give me the time my case required and had someone step in for them. It wasn't that they were giving up on me, just realizing they were spreading themselves too thin.

Perhaps this approach might work for you. You'll never know, shared wisdom may bring about better results.
Ginger