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@danab

Hi Becky , I can't say I've heard that term exacting like your saying it , what I was told was I have hundreds of pathways that are basically rogue as they grew by themselves and don't belong there. And when they would go in and try and map the ones affecting the pacing of my heart. When they found a pathway that was causing an issue they would ablate it with either freezing or heat to shut off that path. Now I had so many their wasnt always time to find them all and also some were in places where they could not reach so ultimately the transplant was needed. So it may just be terminology but what your describing does sound similar. I know one doctor said I could have had over a thousand . The last effort they had was to try an MRI which typically can't be done with a pacemaker , since the magnetic waves would bounce off of it and make it hard to see what they wanted to see. Plus I was in a state that shutting off the pacemaker which was required ment a whole team of both Cardiologist and The techs for the pacemaker company were in the room during it. They tried for a few hours to try and determine where the bad paths were but it was unsuccessful. All I know is Mayo is a great place to be when you have the tought cases. And mine sure had them trying everything. So my doctors usually used terms like bad paths and I guess rougue could be a term to describe them also.

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Replies to "Hi Becky , I can't say I've heard that term exacting like your saying it ,..."

Dana, with the information you gave me, you have a 1 in a million heart too. With yours however, you have multiple pathways I assume are just in the Right Atrial chamber and the SA Node (the heart’s natural pacemaker) is involved. You didn’t mention if the pathways attached to the AV Node(the Command Center) that tells the Right and Left Ventricles to contract and pump the chamber full of blood. You do have a complicated heart but I don’t know if I asked you certain questions, you might not know the answer.

My pathway is just one extra that connects the SA Node and the AV Node together in a complete circle. When a pulse beat jumps into the short circuit circle, it just keeps commanding the right ventricle to pump. The normal pathway is also commanding the right ventricle to pump. That causes my heart to go into Tachycardia and has been clocked at 197 bpm. So yes, our hearts are similar and I would assume yours is a genetic birth defect too.

Now you need to start investigating your family’s past and current medical history. Others may have similar defects and don’t know it yet. I discovered 5 so far in my family with unusual heart problems. Good luck with your heart repair, they’re still waiting to map mine out. @becky1024