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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@1oldsoul

Hi Ginger and thank you for the reply. My hematologist is aware that I have not had a Covid vaccine and he stated they would not work for me anyway. I was too reluctant to take the regular Covid vaccine after seeing all the terrible side affects on VAAERS. He recommended the Evusheld vaccine at my appointment with him yesterday. Just wanted to find out if you had any reaction at all from it. I have never had a reaction to flu or pneumonia vaccines. I am looking forward to reading the discussions here as this diagnosis is pretty recent for me. Right now I am being monitored every 3 months as my IGA and IGG have continued to fall and my IGM continues to rise although he is not too concerned “yet”

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Replies to "Hi Ginger and thank you for the reply. My hematologist is aware that I have not..."

@1oldsoul I had a first dose of Evusheld in February. In two weeks I will get a booster. No reaction the first time around! Be prepared to sit for an hour after they give you the shot, that is the protocol, to watch for any reactions.

In Jan and Feb 2021 I had doses of Pfizer vaccine, then 3rd shot of that in August, plus 4th dose in March this year. No reaction to any of them.

I had MGUS IgM kappa, that progressed to multiple myeloma in 2019, before Covid. At this time I am actively on chemotherapy. Please let me know if I can answer any questions for you. A new diagnosis can be scary, and having a support team is a comfort. My biggest piece of advice is please do not do the "Dr. Google" thing! It can send you down a rabbit hole and dump you out who-knows-where, filling you with worst case scenarios! The biggest majority of people never progress beyond MGUS.
Ginger