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← Return to 200+ transfusions in two years! Rare strain of anemia...advice please
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200+ transfusions in two years! Rare strain of anemia...advice please
Blood Cancers & Disorders | Last Active: Sep 21, 2022 | Replies (31)Comment receiving replies
Hi @renaldo, welcome. It sounds like you are looking for medical consultation for your wife. If you would like to request an appointment at Mayo Clinic, please click this link: http://mayocl.in/1mtmR63
You can call or fill out the online form and then discuss your request with the appointment coordinator.
If you are looking for support from fellow patients and caregivers and to ask them questions, then you've to the right place. Here on Mayo Clinic Connect we're a community of patients and caregivers sharing our stories and giving and getting support.
What type of anemia does your wife have? How is she doing?
Replies to "Hi @renaldo, welcome. It sounds like you are looking for medical consultation for your wife. If..."
Hello Colleen,
No we cannot come in for an appointment as much as we would like to.
We live in Yogyakarta, Indonesia. I am an American, 75 years old, she is Indonesian, 52 years old. I love her so dearly.
We have been told by doctors she cannot travel in an airplane for fear of bleeding from her nose due to cabin pressure. We also cannot afford such a trip.
Due to sub standards of medical care here there is no way to have her either diagnosed or control her symptoms. She suffers so much.
I am seeking advice. Recommendations of what kind of testing might be done to diagnose. Methods to stop her from bleeding so excessively. She will bleed for over 24 hours at times before it stops, expelling many pints of blood and necessitating emergency and hospital stays for transfusions.
She is not doing very well. For a while she was able to remain home for up to two weeks before needing transfusions. Now it seems we must go every week and this involves 4-6 days in the hospital.
She is a very positive woman, Never had complained or felt any sorrow for herself. She is beginning to show signs of becoming so weakened by her condition that she is becoming somewhat negative. This scares me as I am the only one here to care for her at home.
We have some money that I would gladly spend to get her help if I could get her to the United States. I know it would probably not be enough to cover the high medical expenses found in the states, but I would spend every penny to help her and go broke.
Are there any foundations in the states that help people like her? Endowments?
If I lose her, part of me will die.
Warm regards,
Ron Piltzer
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Need to advice or suggestions of care available at Mayo please.