Hi Tanja,
He had the upper R lobe removed. Not the whole lung. He had ground glass nodules that they watched for a number of years with his regular general practitioner Dr. Then one of those grew enough that the local Dr recommended a biopsy. It was a very small mass but turned out to be stage 1 cancer. He self referred to Mayo since it it’s just 6 hours away from us. We were in the system and had phone and video conversations fairly quickly and the decision for the lobectomy was to offer him as much of a cure as possible. They will continue to prescribe CT scans, the first of which is happening sooner than we expected due to something they thought was concerning on his 5 week post op ex ray.
All the people we wired with were great. There are some issues with communication. The patient portal doesn’t work that great for him. Also the order for the CT scan has to go to the local Dr and there is some kind of drop out in that chain as well. I think we have to tell him to watch for it so he can let us know he got it and alert us to schedule the appointment? Not sure on that part.
Anyway there are many people on this chat who might have more info too. I wish you well and hopefully you can get some answers soon.
Mara