Well Lori, I made contact with my Oncologist like you suggested. It was something she said to me from behind me that I didn’t hear correctly because I’m partially deaf in my left ear. Maybe it would have been better had I not contacted her. In what group do you talk about Amyloidosis, the bad kind? Turns out that’s what she’s worrying about because the Amyloids are attacking my heart, brain and kidneys, from the bloodwork over the last 6 months, great huh?
Didn’t you have the same problem? That’s why all my blood results are messed up. She’s mentioned Stem Cells collection, chemo, drugs, but she’s not optimistic I’d make it thru treatment because my heart’s so fragile, she was honest saying that the last time I saw her in person. She’s waiting till I see her in November to collect all the data she needs to decide what treatment because guess what, she’s finally mentioning Lymphoma. She was hooked on MM because of my brother but now she’s waiting to see if it’s hereditary Amyloidosis before she puts a team and plan together. So what do I have to look forward to? Who can I talk to, this sounds scary and lethal for me. Thank you for your advice Lori. Becky