@eileenb1022 I’m sorry if MCC caused some confusion for you. @colleenyoung DID move your comments to an existing discussion that is about Sjögren’s syndrome. You will be able to meet other folks who have sjogren’s and get good information.
I’m glad you feel more hopeful about your new doctors. It is so important that you feel heard and validated. There is so much new information about autoimmune diseases and so many new diseases, that the doctors are still learning. I saw a new neurologist yesterday and when she saw my diagnosis, she said,”wait, what is this? I’ve never heard of this before!” It gave me an opportunity to educate her.
Can you keep some good notes on what is happening and focus on the sjogrens?