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Want to talk to others with fibromyalgia: What symptoms do you have?

Fibromyalgia | Last Active: May 13, 2022 | Replies (43)
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@mbmh

Dear Chelle, I am yet another fibro patient, aged 58, diagnosed two + years ago. There are local pain discussion groups but nothing specifically fibro, and it's lonely when others "don't get it." Apart from sometimes feeling so VERY exhausted, even my loving family members do not seem to understand. One can't wear a sign but some days I need one with the message, "I hurt and am tired." Try to identify one or two close friends who will agree to reach out when you signal.

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Replies to "Dear Chelle, I am yet another fibro patient, aged 58, diagnosed two + years ago. There..."
jodi | @jodi | Apr 28, 2012

They tell me that getting in a good rem sleep helps. Is anyone on any med that helps?

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mklr2009 | @mklr2009 | Apr 28, 2012

You're right about the message you'd like to wear some days! I think we should have t-shirts made up with that simple message, "I hurt and am tired today". Seriously! My family is wonderful but no one truly understands unless they've experienced this; it's called sympathy v/s empathy. That's why it IS so important to have a few close friends who reach out when you signal. The good news is that my close contacts and I laugh together much more than we talk about symptoms. Laughter is powerful.

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