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Hi Becky, your oncologist would be in the better position to diagnose your possible blood cancer. There might be a reason she’s leaning towards MM even though you feel you have a lymphatic disease. Bone pain, back pain, low blood RBC/WBC and platelets being some of the primary symptoms with MM and not lymphoma.
With all your research you’ve possibly been on this website that discusses the differences between MM and Lymphomas but I think you might find it interesting or worth a second look.
https://www.medicalnewstoday.com/articles/multiple-myeloma-vs-lymphoma#comparison-table
With your current symptoms, your doctor may have some merit in her leanings…
I’m relentless in my positivity and encouragement because I’ve been on the ‘holding on by one toenail’ point in my life a couple of times. It’s imperative to take charge and keep moving forward. So whatever beef you have with your doctor, set it aside for now and maybe give her the benefit of the doubt and get the bloodwork done.
If you want to play roulette, that’s fine but I think that’s cavalier considering you’re asking for help finding a diagnosis. It shows me you’re not quite ready to do that. ☺️
What do you think? Are you with me on this? Will you call your doctor please?
Replies to "Hi Becky, your oncologist would be in the better position to diagnose your possible blood cancer...."
Well Lori, I made contact with my Oncologist like you suggested. It was something she said to me from behind me that I didn’t hear correctly because I’m partially deaf in my left ear. Maybe it would have been better had I not contacted her. In what group do you talk about Amyloidosis, the bad kind? Turns out that’s what she’s worrying about because the Amyloids are attacking my heart, brain and kidneys, from the bloodwork over the last 6 months, great huh?
Didn’t you have the same problem? That’s why all my blood results are messed up. She’s mentioned Stem Cells collection, chemo, drugs, but she’s not optimistic I’d make it thru treatment because my heart’s so fragile, she was honest saying that the last time I saw her in person. She’s waiting till I see her in November to collect all the data she needs to decide what treatment because guess what, she’s finally mentioning Lymphoma. She was hooked on MM because of my brother but now she’s waiting to see if it’s hereditary Amyloidosis before she puts a team and plan together. So what do I have to look forward to? Who can I talk to, this sounds scary and lethal for me. Thank you for your advice Lori. Becky
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There’s one part of the equation you don't know. My brother died from MM because he was exposed to Agent Orange in Vietnam. What cancer is linked to Agent Orange, you guessed it, MM.
For me, I was exposed and ate tainted vegetables that were by a weed killer too. I unknowingly sprayed the weed killer close to but not on the plants. So for 32 years, my body absorbed Roundup weed killer. Guess what cancer is linked to the weed killer that people died or got from it, Lymphoma. I’m betting my life on it, that I have it and not MM but everything my Oncologist gives me says nothing’s found. I just went thru a full body X-ray survey, 26 X-rays looking for MM lesions, none found. Guess what, Lymphoma doesn’t usually show up on X-rays. That’s why I’m glowing in the dark from so much radiation. Oh well. Thanks for your advice and concern about me. I guess it’s the wait and see game again.