← Return to Does anyone else have MGUS?

Discussion

Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

Comment receiving replies
@becky1024

I wish I could Lori but my upbringing and ancestors mistrust medical professionals. You see, my maternal grandfather was Native American who also did not trust White man’s doctors. It was his advice to my mother when she was young that saved my life as that 6 month old baby, that White man’s doctors said I was dying and nothing could be done to save me. Know what “dirty water” means to me, it’s what I drowned in when I was 5yo when and my heart stopped. Subconsciously, every time I pass by dirty water, my blood pressure skyrockets to this day. It took 2 years of monthly sessions with my psychologist to figure that one out.

Why do I not trust doctors or medical professionals, simple, 14 doctors from 4 different departments almost killed me. How you ask, I had level 9 chest pain that not a one of those doctors knew what could be wrong. They thought of every diagnosis except the correct one. For 45 days, that chest pain hit as many as 4 times a day, so badly I ended up on the floor in agony. When my blood pressure shot up to 211/113, they forgot about the chest pain and tried to bring it down.

Nothing worked, the lowest they got it was 209/101 and that’s how high it was when they discharged me with this diagnosis “Chest Pain of Unknown Origin!” By the time a stress test was done on me after 45 days or torture, they finally discovered the cause of the pain, 3 blocked holes in my heart. Within 25 minutes I was on an operating table and 4 hours later, I had my 1st heart attack in Cardiac Recovery. And you wonder why I won’t go to doctors unless I can trust, them and I’ve lost faith in my Oncologist and others. I’m a fighter all right, my grandfather gave me that ability because he survived the 1918 Pandemic at age 52 with 9 children, my mother was born in 1920. Thank you for your advice but what I was looking for was symptoms you experienced while your condition was presenting to you. Take care.

Jump to this post


Replies to "I wish I could Lori but my upbringing and ancestors mistrust medical professionals. You see, my..."

Our past can certainly shape our futures but we also can’t dwell on them and need to continually move forward. So for whatever your forefathers went through, though it left an indelible imprint in your thought processes for the future, it doesn’t necessarily mean you’re going to have the same outcome.
I feel badly for you that you’ve had some unusual negative experiences in the medical field. I think most of us have some war stories we’d like to forget. I have a few of my own but I didn’t let that stop me from getting the help I needed.

If you’re having newly worsening symptoms, there is no recourse but to seek medical attention. Try to put that mis-trust aside and approach this from a perspective that your doctor is trying to help you, not to lead you down a path of misdiagnosis. Over your 78 years, medicine has a changed a great deal, especially in the field of blood cancers.

You’re seeking advice on what symptoms to look for if you have blood cancer? Well, honestly, Becky, you’ve named quite a few. So I don’t know what else I can tell you except to simply call the clinic and get in sooner for blood work.

What I experienced with my blood cancer story won’t be the same for yours. But certainly 8 level pain in your ribs which can be indicative of MM, bleeding in urination, bleeding excessively from a small cut, exhaustion, Kidney’s aching, having abnormal bloodwork from past results in April, all point to getting more bloodwork done sooner than your next appointment in September.
Start fresh by looking forward. Don’t keep delving into the past and the bag of what-ifs or what should have been done or what was done. You’re at a large teaching hospital. This is where good medicine can happen. But if they don’t know you’re having worsening symptoms, they can’t help you.
So please, set your mistrust aside and call to see about getting an appointment for bloodwork.