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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@mitten

Hi @becky1024
I am truly sorry you are experiencing symptoms of this nature. It can be scary and create much anxiety. If I can say when I feel this way...I read a favorite scripture and pray. I do something special for myself. However, I think what is important as well is research, generate your questions for your oncologist. Let them work to find a solution to help you function and a plan to navigate this disease. You are worth it.
Mitten1

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Replies to "Hi @becky1024 I am truly sorry you are experiencing symptoms of this nature. It can be..."

Sadly I’ve lost faith in my Oncologist. She seems to be so focused on me having MM because my brother died from it, she excludes symptoms I have that focuses on Lymphoma. I’ve been misdiagnosed to many times because doctors use their textbook knowledge to mislead their diagnosis. My last PCP fell into that trap and wanted me to have a procedure that wasn’t needed. I guess I’ll fall back on my old reliable, playing Russian Roulette with my body. I’ll just wait till whatever happens, happens. If I lose, I’ll be dead. “C’est La Vie”! Take care.