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@becky1024 if you’re having issues with your blood clotting and your appointments are still a ways out, you can call your hematologist/oncologist’s office and let them know you’ve had a change in your blood clotting time and that you’re experiencing unusual symptoms.
They will simply order a CBC blood draw for you to check your WBC/RBC and Plateletts along with all the other usual suspects and to check for signs of an infection. Oncologists are used to changes in their patients’ health and are generally very accommodating to getting people in for blood work ASAP if needed.
Doctor’s and NPs also have built-in emergency time in their daily schedules (not the ER) if you need to be seen sooner.
If you’re passing blood and having this increase in pain level along with kidney’s hurting it could be a UTI.
So, please, just call your oncologist instead of this speculating and stress. Peace of mind is a phone call away.
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Lori, your suggestion isn’t possible because of a revolving door with my doctors. Unfortunately, my hospital is a teaching hospital and all my doctors are part of my problem. When I get a doctor or PA-C, that’s getting to understand how complicated my body is, they leave for advancing their position. My PA-C of 2 years that helped me discover I had MGUS and WPW Syndrome thru our research, up and left me December 2021 with an impersonal letter in the mail. My situation only got worse when my PCP from 2 years ago took me back under her wing. I had one appointment with her April 26th 2022, I believe. My body began
to fall apart and I tried to get another appointment, I did, for January 6th, 2023.
I’m just so frustrated between this freak of nature body of mine and the medical situation I’m lost in. It’s like I fell between the cracks somewhere. I know all about a UTI, also my kidneys are in dyer shape. Because of to many UTI infections and kidney damage, I’ve already seen chunks of blood clots as I urinated (not now yet). So right now, I’m between that proverbial rock and a hard place. My biggest concerns right now is the lack of platelets because of my bad guys progressing. My Oncologist/Hematologist is fixated on me progressing to MM because my brother died from it. I’ve already asked her in text messages about various symptoms that are concerning to me and pointing away from MM to NHL but she never answered lately. So I need advice on what to look for if my bad guys actually progressed to Cancer. I’ve been anemic for over 3 years, my hemoglobin is below normal and the size of my red blood cells is larger than they should be according to my last bloodwork. Something’s not right inside me now, I can feel it and battling 5 cases of Covid since May of 2020, the last was just July 2022, which was the BA.5 Variant. June 4th, I wrote 7 letters on my medical calendar that mades 3 words and tells how serious things have gotten for me. What are those 3 words?
“I GIVE UP”!!!