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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@becky1024

Hi Mittens, just had to let you know how taking something can easily turn dangerous. I think my bad guys are progressing again because my blood won’t coagulate. I accidentally nicked my fingertip and started bleeding so I wrapped a paper towel around it. They tell you that if your platelets are low or less sticky, it won’t clot. Now I have a quandary, my blood won’t clot but how bad is it. The rule for bleeding from a small cut is this, it takes roughly 5 minutes to coagulate and stop bleeding. If it doesn’t, you have a problem, looks like I have a problem but why? I know my blood is progressing to full blown cancer, to many symptoms are showing. I have the fingertip wrapped tightly with bandaids but how can I tell if I finally progressed into NHL or worse WM. How much damage will it do if it has progressed?

I don’t go to my PCP till September 13th and my next check in with my Oncologist/Hematologist till November 18th. I don’t want to get myself worked up so much that I trigger a fatal heart attack but my blood not wanting to stop bleeding has me scared. My last blood test in May shows my B Cells are messed up, low lymphocytes, immature lymphocytes and platelets with White Cells going up along with neutrophils. What signs should I be on the lookout for if I now have cancer? For some reason, my whole body feels itchy, bones in my rib cage are at a level 8 pain, kidneys are hurting and I may be passing blood. I won’t go to the ER, I’ve been misdiagnosed to many time there. HELP!!! What’s happening to me?
@becky1024

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Replies to "Hi Mittens, just had to let you know how taking something can easily turn dangerous. I..."

@becky1024 if you’re having issues with your blood clotting and your appointments are still a ways out, you can call your hematologist/oncologist’s office and let them know you’ve had a change in your blood clotting time and that you’re experiencing unusual symptoms.
They will simply order a CBC blood draw for you to check your WBC/RBC and Plateletts along with all the other usual suspects and to check for signs of an infection. Oncologists are used to changes in their patients’ health and are generally very accommodating to getting people in for blood work ASAP if needed.
Doctor’s and NPs also have built-in emergency time in their daily schedules (not the ER) if you need to be seen sooner.
If you’re passing blood and having this increase in pain level along with kidney’s hurting it could be a UTI.
So, please, just call your oncologist instead of this speculating and stress. Peace of mind is a phone call away.

Hi @becky1024
I am truly sorry you are experiencing symptoms of this nature. It can be scary and create much anxiety. If I can say when I feel this way...I read a favorite scripture and pray. I do something special for myself. However, I think what is important as well is research, generate your questions for your oncologist. Let them work to find a solution to help you function and a plan to navigate this disease. You are worth it.
Mitten1