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Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: Dec 22, 2024 | Replies (74)
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@cantek

Hi Maria,
I was diagnosed 2 years ago after an CT for a kidney stone found the fibrosis in my lungs!
I was very lucky they caught it early and so far I’m stable but no follow up CT has been done ( my PFT,s are good) so maybe that is why?
I’m on Myfortis ( Cellcept caused acute gastritis) and am trying to wean off Prednisone which is not easy I am finding!
What a life changer though! Had to stop working, diagnosed at beginning of pandemic, and been in PT for muscle wasting from Prednisone.
It is definitely a one day at a time diagnosis, I also have Sjogrens.
My focus is self care, Mediterranean diet, exercise, cold pool for inflammation, progressive relaxation and practice of gratitude.
What do you do to take care?

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Replies to "Hi Maria, I was diagnosed 2 years ago after an CT for a kidney stone found..."
mariakathleen | @mariakathleen | Aug 15, 2022

Hi Cantek,
Thanks for replying and sharing your story! Wow, you’ve been through a lot. Did your kidney stone pass?!
I didn’t know Cellcept could cause gastritis. Also, I didn’t know prednisone can cause muscle weakness. I gained 20 darn pounds in last 2 years, I think due to prednisone. I’m on 10 mg daily. I’ve been on that dose about a year. I’m glad your PFT’s are good! Those aren’t fun tests! I go again for another one and a CT scan in October. Before I had that slight increase this past March, I did ct scans about every 9 months to a year.
It sounds like you really take good care of yourself! I also adher to the Mediterranean diet. I do weights 3x a week, stationary bike and treadmill for total of 30 mins a day. Working on doing more. I recently finished pulmonary rehab and really enjoyed it!
I go to Cedars Sinai in Los Angeles.
It’s a daily struggle as you know. I pray everyday, say the rosary when I can and am thankful for what I can do. I just try to really appreciate the little things!
I’ll keep you in my prayers!
Keep in touch, hugs to you too!
Maria

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