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Can cerebellar degeneration bring sudden death while sleeping?

Stroke & Cerebrovascular Diseases | Last Active: Aug 15, 2022 | Replies (5)
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@bradsohns

Thanks for your reply and concern. Yes, I was able to sleep okay. The last two nights went well. The Mayo doctor won't reply for 2-4 days according to their portal reply message. The world of Cerebellar Degeneration seems to not be well understood and I'm not expecting anything profound since I was told by Mayo a year ago that there is no treatment and no cure. I'm doing well though. It was just such a frightening experience that it shook me. Envisioning one's death was not fun. I'm a very positive person though and I enjoy every day with my awesome wife.

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Replies to "Thanks for your reply and concern. Yes, I was able to sleep okay. The last two..."
Helen, Volunteer Mentor | @naturegirl5 | Aug 15, 2022

@bradsohns Thank you for your reply. It's good that you were able to sleep well. As you noted you may not receive an explanation of the interruption in respiration you had a few nights ago however it's good to let your team know what you experienced. I have known people with cerebellar degeneration and it makes me sad that no explanations or treatments are available. I'm with you - envisioning my own death is not fun. We all "know" that we will die one day but we are mostly able to make that an academic sort of thought without focus on the moment arriving sooner than we thought it would. This has hit me at an emotional level I never had before cancer. I'm heartened to know that was you wife is "awesome" in your words and adds to your joyful living of every day.

If you hear anything significant or helpful from your medical team that would enlighten me and other members, would you please come back and let me know?

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