← Return to Polycythemia Vera: Just been diagnosed

Discussion

Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

Comment receiving replies
@jerrlin

I was diagnosed with PCV in May 2022 , but started the itching symptoms in 2019 with perfect blood counts. I am 2 baby aspirin a day and have had 2 phlebotomy’s. Right now my hematocrit is at 44.1 and my hemoglobin is 14.3. I wondered if anyone has found relief from the itching and also hair loss. ? I am 73 years old and otherwise in excellent health.

Jump to this post


Replies to "I was diagnosed with PCV in May 2022 , but started the itching symptoms in 2019..."

I find your post interesting because back in 2019 when I first discovered something was wrong with my blood, I was sent to an Oncologist/Hematologist. Turns out I have a blood condition known as MGUS. In my case, it was triggered by precancerous cells discovered in my blood. One of the first things she noticed was, I was anemic, my hemoglobin was below normal, my platelets were down while size and count were messed up. She gave me a number of tests to see why I was anemic but never found the reason.

Fast forward to September 2021 to December 2021. I’m still anemic almost 3 years in September, then between September & December everything is in the middle of the normal range. I think what the he!! triggered such a drastic change. That’s when I noticed my
M-Spike has spiked 100%(an indication my precancerous cells are progressing to cancer). Humm, along with my red cells increasing so much, along with all the other parts of my blood, I couldn’t figure out why, until I read about PV. Since then, my blood numbers are all over the place, including my B-Cells, lymphocytes and neutrophils, indicating my body must be fighting a serious illness like cancer.

I no longer believe I have PV but I do have a number of the same symptoms that you have. Your Pcp could prescribe a medication like Antihistamines to ease the itching. As for your hair loss, ask your Pcp if your body is producing DHT, it’s a substitute for natural Testosterone women normally make for child development in pregnancy. When women lose the ability to produce natural Testosterone, the body makes DHT which kills the roots of your hair causing it to die and fall out. So disgust this with your Dr.