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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

Caregivers | Last Active: Sep 30, 2023 | Replies (107)

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@722jo

First of all thank you so much for responding, I forgot to add his General practitioner told him he doesnt think its MS OR PARKINSONS but cant rule out ALS. (MY husband specifically asked him. Yes I'm constantly asking him about his symptoms and he frequently gets angry when I do. If you look it up the twitching is the key, but then he has all the other classic s/s of ALS. He is on all the waiting list especially here in IN. Some of the Neurologist here dont see ALS. When he first wakes up the symptoms are worse and at night but the twitching never stops and moves around, its the neurons attacking the muscles. Yes Ive started a list, because I know as a heart patient and diabetic you can forget things when your at your Dr. apt. I' m starting first thing in the am to call more Neurologists. Again, thank you so much for listening. I hope you are doing well.

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Replies to "First of all thank you so much for responding, I forgot to add his General practitioner..."

Hello @722jo

As I thought, you are very well prepared for his appointment and I'm glad to hear that you are persistent in finding a neurologist who can see him sooner. It sounds as if you are feeling fairly certain about the ALS diagnosis.

Does he currently have any problems with swallowing?
What about his speech?