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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

Caregivers | Last Active: Sep 30, 2023 | Replies (107)

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@colleenyoung

Hi Jo, I can imagine how concerned you are that your husband may have ALS, MS or Parkinson's. The prospect is scary regardless of diagnosis.

I'd like to tag some members like @allegro @julesa @bethclardy22 @laurahquayle11 and @hopeful33250 who can share about their experiences ruling out neurological conditions and help with preparing for your husband's upcoming appointment with the neurologist, like what questions to ask.

You may also be interested in this related discussion that @gcranor started with helpful posts from @jenniferhunter @rivermaya34 and @larryh123

- Neuromuscular Testing and Waiting for ALS confirmation https://connect.mayoclinic.org/discussion/neuromuscular-testing/

Jo, you must be anxious to get a diagnosis. Is there any way to get an appointment with neurology sooner than in 6 months? Have you considered getting a second opinion at a large medical facility like Mayo Clinic?

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Replies to "Hi Jo, I can imagine how concerned you are that your husband may have ALS, MS..."

Thank you so much for this, Hes sitting around and starting to get depressed. I will follow up and keep trying to get him to a neurologist that takes his insurance. As a retired nurse I can tell you he has all of the classic symptoms, heaviness in the arms and legs. twitching in the arms, hands, legs, his general practitioner gave him a muscle relaxer which has helped a little. We are on many waiting lists and one is in Chicago about 30 min away.