Cerebral amyloid angiopathy: What do you take for headaches?

Welcome @jkrysman. Allow me to bring others into this discussion who have experience with cerebral amyloid angiopathy to share how they manage headaches, members like @gbiffart @nicolehf @nanatessie @jamestitus @sistertwo @larryh123 @keithl56 and @shedwina

While we wait for other to join the discussion you may be interested in this related discussion:
- Cerebral amyloid angiopathy: https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/

Jkrysman, does acetaminophen help your headaches or is it no longer working? How often do you get headaches?

Whoa, this is a little intimidating😮 I’m not very savvy on the whole internet thing and all that comes with the technologies. Just was diagnosed with “probable CAA “ and have just got the results of my NDSY I did this week. Averages/low averages and a couple of below expectations and difficulties were the key words on the test’s report,
Diagnosis from test , “AMNESTIC MILD COGNITIVE IMPAIRMENT”.?? I’m 70.
So, I’ve been doing a lot of reading, from Boston, Harvard, John Hopkins, research studies..lots of “maybe, could be, possibly”. is this because there’s not a whole lot of brain tissue laying around to confirm a diagnosis?? I fell down a flight of stairs March 2022.. “subarachnoid hemorrhage, microbleeds , superficial siderosis rt frontoparietal and lateral temporal lobe sulci , peri ventricular white brain matter “likely” sequels of chronic micro vascular ischemia”. NO CLUE what most of that is except maybe a minor stroke when I gashed my head?? Please tell me what yr take is on this.I’m just thankful I’m alive🙏..ambulance to ER! 2days ICU, 3 day Trauma Wing in Dallas. Any replies by anyone will be helpful. I don’t see my Neuro at Mayo for another 6 wks, it’s so backlogged! When do they determine the AD/Dementia dilemma, which one I will probably get, and when? I can’t thank you enough for you’re time !

Sphillips, getting such a diagnosis is scary and seeking support online and learning how to navigate a website is intimidating. But, I have good news. Learning new skills is good for the brain.

Let me give you a simple help solution should anything about the website and how to navigate it get overwhelming. Simple file this link in a safe place and you'll send an email directly to me. I can steer you to the right place or whatever you need.
- Contact a community moderator https://connect.mayoclinic.org/contact-a-community-moderator/

Now to your diagnosis. I'm hoping @larryh123 @artscaping @jkrysman and and anyone else interested in brain health will join our discussion. Amnestic mild cognitive impairment is MCI that primarily affects memory. I think you might appreciate following this blog authored by the medical directors of the MCI program at Mayo Clinic:
- Living with Mild Cognitive Impairment (MCI) https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/

Sphillips, what memory issues or situations do you find most frustrating? What tricks or tips have you learned to help compensate?

Yes, I have been reading the site on MCI. Very informative. I’m reading everything I can find and my husband won’t discuss any of this until we see the doc in Oct! I have talked with him with a “probable “ diagnosis
Of CAA. The MCI dx was from the Neuro/Psyche Dr
that gave me the MEGA test! So do they go together or is one my primary dx, and the other a secondary?
Thanks so much for yr help. Somehow they picked up the wrong password. How do I change it?❤️

Great to have you here. It sounds like your husband might be scared about your diagnosis (understandably). He's worried about you and about himself too and what changes the diagnosis might involve. I guess he wants a more definitive answer before going down that road.

How to reset your password:
1. Go to the reset password page here https://connect.mayoclinic.org/pwreset/
2. Enter your email and click Send me an email.
You will receive an email with the subject line: [Mayo Clinic Connect] Instructions for Password Reset
3. Click the second link in the email.
4. Create a new password and re-enter it to confirm it.
5. Click Update My Password.
6. Sign In.

If this is unclear, send me an email using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

I heard that Botox injections help.