Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

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@wildcat

Hello

You have my sympathy. My itching was so bad on the front of my legs that I scratched them until they bled; I just could not help it. I tried everything recommended by my doctor but nothing helped until I tried E45 anti-itch cream. Different creams seem to work for different people but this was a life saver for me. Good luck.

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I did a quick search and learned that E45 Itch Relief Cream does not show up when I search for anti-itch creams. That is when I saw that it is a UK brand and discovered that it is available at the major chain retailers with the lotions and creams.
Here is some information that I found.
E45 Itch Relief Cream is used to treat and soothe itching caused by conditions such as eczema, dermatitis, puritis and other dry skin conditions.
Ingredients:
Urea 5.0% w/w. Lauromacrogols 3.0% w/w. Also contains: Dimeticone. Phenyl Dimeticone. Liquid Paraffin. Cetyl Palmitate. Stearic Palmitic Acid. Octyldodecanol. Polysorbate. Carbomer. Glycerol. Benzyl Alcohol. Trometamol. Purified Water.

@wildcat, Thanks for reaching across the many miles to share another possible solution for itch relief.

It is wonderful to hear your voice.
Do you have a photo(s) that you might share from Scotland in the discussion:
Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
@wildcat - How are you doing? How long has it been since your transplant?

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@jeanne5009

@rosemarya
I will be calling my hep tomorrow. STILL itching with bumps and scabs on my head. Today I tried apple cider vinegar! To get me to try gimicy trends is unheard of but Im desperate. Believe it or not...I have to say it seems to be working. I took a cup in the shower added another cup of warm H2o and pored it over my head. I hardly use soap except castile which I have used for years. Switched to no fragrence laundry soap too.. I'm using Aveeno oatmeal body wash for my hair. We'll see...
Wondering if the water company added a different chemical.. nobody told us life would be this much fun!!! L o l

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Vinegar: your account is parallel to that of my sweet friend. She has a MELD of about 14. Yesterday morning she messaged that she was miserable with itching.
1) washed bedding in no-fragrance detergent (she previously used perfumed-up detergent, and she uses too much)
2) went on vitamin D3 solar walk, about 25 minutes, with skin exposure. At this point still itching, with scratching marks
3) epsom salt bath. Did a little good, but still itching
4) rubbed a "solution" of 2/1 water/vinegar (regular 5% house vinegar) on her.....fanned it with a notebook to reduce burning sensation......it worked ! For about 3 hours or so. She repeated one more time. Seems it did the trick
* * I looked up " cirrhosis itching vinegar " , but only little result, mostly about INGESTING, orally, apple cider vinegar, but only a small handful related to itching. As far as being beneficial or toxic to liver the results were on both sides, seems more pro than con.
I tentatively "conclude" (again, tentatively) that the risk is small (could actually be good for her) if taken orally, THUS if applied to skin would be (I assume) little absorption, that * the benefits outweight any risk * *****
I am bringing her on a solar vitamin D3 walk (again, with skin exposure) again today.
She also popped a vit D pill (50% daily value). Maybe should have popped a couple of more?
God have mercy, best wishes to all.

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@paulmarchandinbehalfoffriend

Vinegar: your account is parallel to that of my sweet friend. She has a MELD of about 14. Yesterday morning she messaged that she was miserable with itching.
1) washed bedding in no-fragrance detergent (she previously used perfumed-up detergent, and she uses too much)
2) went on vitamin D3 solar walk, about 25 minutes, with skin exposure. At this point still itching, with scratching marks
3) epsom salt bath. Did a little good, but still itching
4) rubbed a "solution" of 2/1 water/vinegar (regular 5% house vinegar) on her.....fanned it with a notebook to reduce burning sensation......it worked ! For about 3 hours or so. She repeated one more time. Seems it did the trick
* * I looked up " cirrhosis itching vinegar " , but only little result, mostly about INGESTING, orally, apple cider vinegar, but only a small handful related to itching. As far as being beneficial or toxic to liver the results were on both sides, seems more pro than con.
I tentatively "conclude" (again, tentatively) that the risk is small (could actually be good for her) if taken orally, THUS if applied to skin would be (I assume) little absorption, that * the benefits outweight any risk * *****
I am bringing her on a solar vitamin D3 walk (again, with skin exposure) again today.
She also popped a vit D pill (50% daily value). Maybe should have popped a couple of more?
God have mercy, best wishes to all.

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Welcome, Paul. How is your friend doing?

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Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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@crystalfaye, I commend you for discussing this with your transplant team. I had itching before my transplant, but I don't remember it being a problem afterwards. I hope that this discussion, specific to after transplant itching will catch the eye of some of our transplant recipients.

In the meantime, here a discussion where members have shared experiences with pre-transplant itching.
-Liver disease itching: What helps?
https://connect.mayoclinic.org/discussion/liver-disease-itching/?
@crystalfaye, Did you have liver failure related itching before your transplant? Your clinic said that this after transplant itching happens a lot (as a patient, I did not know that) - So did they offer any suggestions?

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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@crystalfaye I had terrible, terrible itching both pre and post transplant. I used Sarna anti itch cream extra strength with menthol. And of course, friends hands, door jams, spoons. It was torture and mostly on my back. Post transplant it lasted a month then began to fade. I still put moisturizer all over, except my scar, each morning after showering. Itching is no longer a worry after a year of relentless itching. It is very common.

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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I had some intense itching before my transplant but it was localized to specific areas of my body. What I am experiencing now is more of an all over skin irritation. Like my skin is crawling if that makes since. They put me on a multi-vitamin but I haven't seen any difference as of yet. It has only been a week. I am also diabetic and take insulin which complicates things a bit. All in all I am feeling pretty good. My strength and appetite are returning by leaps and bounds. It was so nice to walk around a store yesterday, with my mask on of course, and not have to use a walker or cane.

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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Hi @crystalfaye 😊
Congrats on your new liver transplant! I am a two year post kidney transplant patient and I remember having itching for the first couple of months. (I had no itching pre-transplant but I needed a kidney not a liver.)
The itching was especially pronounced the first month when I was living in the rental close to the hospital. When I called my transplant nurse back then, she told me it was common and I could take some Benedryl to calm it down. I know you are a liver transplant patient and I am a kidney transplant patient, so I am not sure if we are on the same immune suppression meds, prophylactic meds, etc but it may be just the body adjusting to the new meds because the itching did go away. The Benedryl helped, but you would have to discuss this solution with your transplant nurse since I don't know if it's safe for a liver transplant patient.
Again Congratulations! ❤

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@katebw

@crystalfaye I had terrible, terrible itching both pre and post transplant. I used Sarna anti itch cream extra strength with menthol. And of course, friends hands, door jams, spoons. It was torture and mostly on my back. Post transplant it lasted a month then began to fade. I still put moisturizer all over, except my scar, each morning after showering. Itching is no longer a worry after a year of relentless itching. It is very common.

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I purchased some Sarna today. Praying it helps!

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@crystalfaye

Hello. I am 9 weeks post liver transplant. About 4 weeks ago I started itching. No particular spot just all over and it seems to get worse at night. I mentioned this at my last clinic appointment and was informed that this happens to a lot of transplant recipients. They are not concerned even though my ALP is a bit elevated. Has anyone dealt with this and if so what did you use for the itching?

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Hi @crystalfaye 😊
I am just checking in! ....Did the Sarna help a little bit?

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