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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)

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@clayesq

hello, all...
New to the group. I have been living with melanoma since 2014, and last year progressed to Stage IV. Currently NED, with clean scans since July '21, but perpetually scared and uncertain as to what I am supposed to be doing to live with this disease... so, hello! 🙂

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Replies to "hello, all... New to the group. I have been living with melanoma since 2014, and last..."

@clayesq Welcome to Mayo Clinic Connect. I see you joined us a while ago and this is your first post. Being scared and uncertain is an awkward way to live each day, isn't it?

Like many of us here, I am a cancer patient. Malignant melanoma on my right forearm was removed 12/31/2008. In addition, I have had many squamous cell carcinomas surgically removed by MOHS procedures. Beyond that, I am a blood cancer patient currently on chemo, and a dialysis warrior with failing kidneys.

You ask what you are supposed to be doing to live with melanoma. My experience and thoughts: get your full body skin checks every six months or more often if you notice something. Wear sunscreen everyday. Minimize your risks. Live your life looking forward, planning your next great adventure. If you are still working [I noticed the JD in your profile], make it meaningful. Eat healthy but leave room for a binge. Exercise in moderation. Be grateful for the little things, and profoundly thankful for the big things. Smile, and project that to others. Make a difference.

What will you do with today?
Ginger