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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease
Caregivers | Last Active: Aug 10 9:15am | Replies (109)Comment receiving replies
My 62 y/o husband was just to his Dr. for legs arms feeling heavy like he ran a Marathon. Muscle twitches in his arms, hands, back. The 3 possibilities the Dr. mentioned 3 possibilities, ALS, MS, Parkinsons, but said he didnt think Parkinsons because the hand shakes and my husbands hands/fingers didnt they had twitching. He cant even get into a Neurologist until end of January. Is there anyone out there with experience with ALS who can tell me the beginning symptoms their loved one experienced? This is a long wait and we are devastated.
Replies to "My 62 y/o husband was just to his Dr. for legs arms feeling heavy like he..."
I'm so sorry 722jo I agree it is so scary not knowing. My husband 66 was told he might have ALS 2 months ago. There are hundreds of questions and hardly any answers. Started with his hands shaking when using them the doctor thought Essential Tremors. But after a few months he had major muscle loss in his arms and shoulders no where else. Now they think ALS I have read so much but really no answers that are for sure, The unknowing is terrible on the heart and nerves. We have been married 48 years so it has to be some other type of neuron disease. Hope you get some good answers soon. Glad I found this forum where I can see what other people think and say my hubby sure doesn't want to talk about it.
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Hi Jo, I can imagine how concerned you are that your husband may have ALS, MS or Parkinson's. The prospect is scary regardless of diagnosis.
I'd like to tag some members like @allegro @julesa @bethclardy22 @laurahquayle11 and @hopeful33250 who can share about their experiences ruling out neurological conditions and help with preparing for your husband's upcoming appointment with the neurologist, like what questions to ask.
You may also be interested in this related discussion that @gcranor started with helpful posts from @jenniferhunter @rivermaya34 and @larryh123
- Neuromuscular Testing and Waiting for ALS confirmation https://connect.mayoclinic.org/discussion/neuromuscular-testing/
Jo, you must be anxious to get a diagnosis. Is there any way to get an appointment with neurology sooner than in 6 months? Have you considered getting a second opinion at a large medical facility like Mayo Clinic?