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DiscussionDouble Vision and Autoimmune Diseases like MG: Can anyone relate?
Autoimmune Diseases | Last Active: Sep 16, 2023 | Replies (54)Comment receiving replies
Replies to "Good morning., Thank you so much for responding. Im having a lot of pain in my..."
Hi, nedradenise, Well, it sounds like your rheumy is trying to do the right thing for you. It doesn't get much better than a Mayo Clinic!! And it's good to be having the colonoscopy. You will be in my thoughts. Good luck to you.
@agirlthing1977, @nedradenise, @aspine, and all...I've had double vision for many years, maybe 20-25...It's no fun and seems to get worse when I'm tired, upset, or have dry eyes are worse. Then, there are times it goes away. I find if I close one eye, usually the left since it's easier to close, I see fine but for a bit off for peripheral vision. Watching a movie or TV is really fun! At night watching tv I often cover one eye.
I was misdiagnosed several years ago with MG. Mis-diagnosed. I don't have it. There are several other reasons for double vision. I visit Mayo Florida and they think it's more of a muscular issue. It can be corrected by special lenses in glasses if it gets bad enough. Mine is worse recently, so may look into the glasses again. We'll see.
But, most importantly to me, you mentioned your bloodwork is good and it appears the double vision is the only symptom. Do you have other physical symptoms causing you problems? Also, what does the doctor say about the prednisone not helping? I'm surprised you are on prednisone with just double vision symptoms. Steroids are strong meds and while they saved my life when I had Sarcoidosis years ago and now off and on as needed for bronchitis or other issues, they can take a toll on the body in other ways. Aside from weight gain and bone issues, it changes your body-I began to look permanently pregnant due to the prednisone enlargement of my belly. I've recently lost about 35 pounds but still and always will have an enlarged belly. I get a moon face every time I take prednisone, have had unwanted hair growth on my face and arms, and other issues. So, while it can be a life safer, be aware of the possibilities associated with taking it.
Also, why does your doctor diagnose MG? Are you seeing a rheumatologist? neurologist? I think it's very important to do a lot of research, be your own advocate to find answers, to find the right answers...Fight for knowledge and then go forward to improve your health. It's a journey that can be dificult, challenging, and productive. I'm healthier now than I've been in many years...still have the same illnesses, but am dealing with them differently and have excellent doctors working with me.
Be well. Be better. Be blessed. Elizabeth