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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)Comment receiving replies
Good morning! By my reckoning it’s Day 25 post transplant for your husband. I just happened to run across my journal entry for my Day 25 this morning while rummaging through documents on my computer. Amazing how life has changed since then. It’s always interesting to read what I wrote along that journey, to watch the progress!
I hope your husband is gaining strenth now and feeling much better than a couple of weeks ago. I’m expecting his appetite has improved a little and he’s getting more food down. Has he been walking around the neighborhoods of Rochester?
Caregiving for a SCT patient is a challenge. Especially getting us to eat! LOL. How are you holding up? ☺️
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Hi Lori,
Doing ok. I’m just taking things a day at a time. He is doing a little better every day. Eating hasn’t been a problem for him but getting enough fluids in continues to be a challenge. We are working on that. He has had extreme fatigue but is slowly coming out of it. He’s now more willing to take short walks, which is great. No GVHD either. We celebrate every milestone😊.