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DiscussionHair loss after transplant, probably Tacrolimus: Anyone change meds?
Transplants | Last Active: Jun 11 10:36pm | Replies (179)Comment receiving replies
Replies to "@shepn7, I requested that your question be moved to this existing discussion where you can connect..."
Hi, My transplant was 11 years ago. I lost all the hair on my body with the exception of the hair on my head! ! It became finer but has gotten better with time. The hair on my legs came back eventually but it is very very sparse. Retained my head hair even through interferon treatments. It certainly surprised me that it did not fall out like the rest of my body hair did. What did happened was very severe discoloration of my legs and arms as if every vein had broken It took years to begin to get better, even now there is some discoloration, but I am alive! The most important thing!
@shepn7
Scott Jensen here. Heart transplant in December of 2019. I was voted best hair in high school and in my mid 50s started to lose a little hair but nothing dramatic. However, it really accelerated after the transplant. I am guessing it is mostly due to "Tac". My current dosage is about 60% of the initial prescribed amounts and I have been mostly stable for almost two years. I have embraced the loss and just got back from the barber. #2 buzz with tapering at the ears. It is definitely easier to manage. And as others have stated I don't have much left on my legs and arms. However, I shave those off now as I live in Arizona and sunscreen applies so much easier without hair gunking up the application. I think the new head hair matches the new me. I also have never been overly focused on the past nor do I think I should try to look like I did when I won that hair award. Hair loss was not part of the plan, but neither was heart trouble. In fact, in the hospital when first confronted with a failing heart, I mentioned to my wife that "This was not part of the f'n plan! She calmly held my hand and said, "Then we change the f'n plan."