← Return to Asymptomatic Atrial Fibrillation: How do you monitor?

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@frenchie333

No answers or suggestions yet. Your situation is similar but different. I've got low BP but high HR. My A-fib is sporadic in terms of my feeling my heart flutter. Call me crazy but I've noticed that certain neck positions exacerbate the A-fib. Have yet to order that book, "Afib Cure." Shame on me. But I'm stretched to the max dealing with my mastocytosis which has escalated to MCAS/GI since the double jab. The chronic diarrhea (now almost under control after a months-long battle) may be the root cause of my A-fib (dramatic loss of electrolytes). I've been low in magnesium and am cautiously trying forms that are purported to be less laxative.

Would like to address the root cause rather than treat symptoms.

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Replies to "No answers or suggestions yet. Your situation is similar but different. I've got low BP but..."

I was born with a rare 1 in a million birth defect. It has caused many problems including Pulseless Ventricular Tachycardia, Bradycardia, A-fib, Spontaneous Blackouts and Spontaneous unconsciousness. I don’t want to get into the technical aspect of it but it’s all associated with WPW, Wolff, Parkinson, White Syndrome. My Electrophysiologist was concerned about the instant blackouts since I was 10yo, I’m 78 now.

So he placed a special $25,000 loop heart recorder just under my left breast. It monitors my electrical beat signals 24/7 and is checked every day by my team members in Oregon. My last major Tachycardia was clocked at 197bpm and it’s beating so fast you cannot feel each individual heartbeat. The monitor was inserted into me in August of 2021. I purchased one of the top rated blood pressure machines that give you 4 different heart signals
A-fib is one of the features. In October of 2021, on 3 consecutive days the bp machine indicates I was in A-fib. I contacted my doctor and asked did my loop recorder in my chest show I was in A-fib on those days. He said no, but that he adjusted my loop recorder to be more sensitive. I didn’t have any symptoms when my bp said I was in A-fib but since then, on March 4th of 2022, I had a major heart event not related to any electrical signal malfunction and 6 days later, I also had a major seizure of some kind. At present, my neurologist, Electrophysiologist and PCP are scratching their heads wondering what happened, since the loop recorder never recorded either event.

As for your situation, it’s like mine, events happen but they can’t explain why. Has your E Doctor suggested a pacemaker with a defibrillator. It shocks the heart back into rhythm and the pacemaker keeps it beating in the amount it is set for. Because of my heart birth defect, it won’t work like that in me. Hope my experience helped in some way. @becky1024.