← Return to Does anyone else have MGUS?

Discussion

Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

Comment receiving replies
@mitten

Hi Becky 1024,
Thank you for sharing and I did not know about the vitamin and/or garlic. Definitely, good to know. It certainly addresses why they want to see every (3) months for the past two years. My IGG has been in the low 2000s sometimes higher, but generally low 2000s. My FLC ratio is now 2.06 and my Lambda is now 10.6 with my Kappa 21%. It was a little higher but came down a little since June of this year. Believe it or not I am more concerned with my bone marrow being hypocellular (not making enough cells) as I am thinking would I need a BM transplant down the road as I get older. I want to know prepare myself if you know what I mean. Thank you again for the advice.

Mitten1

Jump to this post


Replies to "Hi Becky 1024, Thank you for sharing and I did not know about the vitamin and/or..."

Yeah, I know what you mean about numbers. My new pcp wanted to get notes from my doctors but there are just to many. If I were dead, I’d be a zombie. With so many parts of my body failing, I chose the top 7 doctors that are keeping me alive. The medical problems are so serious, any one of the 7 will kill me, sooner or later, preferably later. Heck, 3 of them are genetic defects and 5 of them are birth defects. It’s a losing battle mom, take one step forward and then two steps back. No wonder the doctor physically had to pull me out of her. I probably wanted the safety of being inside her, knowing what was waiting for me out here.

My poor body is being ravaged by to many bad guys. The doctors can’t focus on one disaster without another doctor stepping in the way. I don’t even have a fighting chance to choose what I want them to focus on, my blood or heart because they’re involved in a major battle inside my body. My brain is ready to jump in anytime, throwing disaster bombs. Get this, a mini stroke, seizures, peripheral neuropathy that’s robbing me of both legs, feet, arms and hands. Now it added a level 9 head pain over the entire head. Gee mom, who can I laugh at, if I can’t laugh at myself. Mom, just remember, I have 4 more things trying to knock me off here, got any more surprises? I have more things wrong with me I could put on the list but I’m already depressed enough. I’d cry if it wasn’t so serious but I did enough of that last night.

Take care of yourself Mitten, just think of this saying. “I cried because I had no shoes, until I met a man who had no feet.” Things can always get worse, like last night. I saw a woman pushing a man in a wheelchair, he had no legs at all, wow!!!