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@cmael

It’s been 4 years since my transplant. I also don’t have a local nephrologist, but if needed I suppose I could go back to the last one that I saw before my transplant. She had told me at the last appointment before my transplant that Mayo would be keeping a close eye on me when I asked if I’d be seeing her again. I have a local PCP. There’s an open network between both providers. My labs are done at a local medical center every 3 months. They were done monthly for the first year, then changed to every 3 months. Then the BK virus showed up. My Cellcept was lowered to 500 mgs twice daily from 700 twice daily. Back to monthly labs. The virus slowly lowered in my labs and after many months disappeared.
I had a biopsy done shortly after my transplant because I was showing signs of rejection. Steroid infusions corrected that problem. Then I had another biopsy at 4 months and 1 year. The second year I didn’t have one because I’d forgotten to stop my daily aspirin soon enough. I haven’t had a biopsy since. I was scheduled for one at my 4 year checkup but she gave me a choice. She said that I was doing so well, she was fine with me skipping it since there are risks with it, too. All of my blood work, except glucose, comes back in the normal range.

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Replies to "It’s been 4 years since my transplant. I also don’t have a local nephrologist, but if..."

@cmael, Your after transplant care sounds very similar to mine. I am happy to hear that you are doing well.
I guess I assumed that everyone had the same follow-up plan.

Hi @cmael 😊
I am celebrating my two year post kidney transplant anniversary this month. I read your excellent and very detailed post regarding your test and lab schedule after transplant. I saw that you mentioned you had a biopsy early after transplant because there were signs of rejection. I am curious to know what signs or symptoms did you experience during that period of time? Also, are you still on 500mg bid of Cellcept and Tacronlimis or something else?
Thanks so much for sharing!